Wednesday, April 27, 2011

My Plan of Treatment

I wanted to write a blog to let everyone know what is happening with me. I try to blog about what is happening with my health so that all of my prayer warriors and praying buddies out there can know what’s happening to me.
I am currently seeking medical treatment because I have a condition called Gastroparesis, which is where your stomach doesn’t move. So I can’t really eat much. Most of you know that, and I’ve written a lot about it.
The newest development is that the stomach specialist at John’s Hopkins thought I should be seen by a pancreas doctor. So I had tests run on Monday of this week. The doctors found a mass growing on my pancreas, which greatly concerns them. They really don’t think that it is any kind of cancer, however they have not ruled that out 100%. They did a blood test which will help determine if there is any cancerous cells they should be worried about. I will find the results to that early next week.
The next step is to monitor the legions that are growing on my pancreas. They think that the mass could cause trouble if it grows or changes. This mass could be a result of the chronic pancreatitis that I have had since Sept. 09. Or it could be a benign tumor that is growing that could cause problems.
I can have surgery, but the long and short of it is that I am not healthy enough right now with all of my other problems. Plus it’s a risky surgery as to what they’d have to do.
So to make a long story short, I have to see a few more specialists and go through a few more tests over the next few weeks.
Then hopefully I will be able to come home to Texas for a month or two.
Then I will have to return to Baltimore to repeat all of the pancreas tests to see if the growth has changed. If it has, then we may have to do surgery. Any surgery involving the pancreas is very risky.
I still can’t eat much. I still am tube feeding. I will likely struggle with that all of my life, but I can eat little things here and there when I have to, but the less, the better. If I can tube feed, that’s optimal for me. So that’s mainly what I’m going to be doing so I can be comfortable.
I have a very important doctor’s visit tomorrow. I would appreciate your prayers regarding that. It’s at 1:15 p.m.
Saying all of this, I am confident in God that He has everything in control. We don’t know why this is happening, but my relationship with God is not contingent on what trials a go through. I love Jesus Christ more than anything , and He is the great physician. When He heals me of this, I will be able to praise Him and my healing will prove He does miracles today! I just know He is healing me already.
This is hard on me for several reasons. First, because I miss Kevin. For those of you who know me well, He is the absolute love of my life. He is my hero and the one I look to for comfort, love and most of all laughs during our doctor visits. He is my better half and without him, I couldn’t walk this road. I just couldn’t Secondly, I miss my Texas family. I miss my other mom and dad and family there.
My parents have been so good to me during this. I feel so needy. I feel like such a burden right now. I feel like I am sucking them dry from all of my appointments…having them drive me every day to Baltimore or Lutherville. It’s hard, but I know they love me. I cry because I’m not worthy of the Love they give. I am SO blessed. I adore my mom and dad and I am so thankful for God giving me them. I cry at the thought of all they have done for me. And I know they do it out of serious love for me. That’s exactly What it is…pure love.
Anyway, I am okay. I will be fine because the Lord is in control. Keep praying and I’ll keep you updated. We don’t want this growth to get bigger and we don’t want surgery or it to be cancer. Those are the things you can pray for right now. Pray that my stomach doesn’t get so sick all of the time and pray for my Husband and family.
I want everyone who reads this to know that I know God, the Lord Jesus Christ as my personal savior and friend. I know Him as my father, and I am never going to quit asking my father and my best friend for health and healing and happiness. But saying that, I am going to love Him no matter what I walk through. And I’m going to be happy doing it. I have been so blessed with so many things in my life, most of all Jesus’ love and my husband and family’s love. If I never have another blessing in my life, I would be satisfied and still be among the most blessed people in the world. I wouldn’t trade my life for anything in this world.
I hope I haven’t confused you. I am writing this kindof fast and I just wanted to get it typed up so that you all would be able to know what was going on!
I love you all!
Love, Ami :)

3 comments:

  1. Dr. Cameron at John Hopkins is the leading authority on the pancreas he did my mothers surgery and he is an incredible man doing all this at 70 years old...you are in my prayers...Love you!!

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  2. We're praying for you & miss you! Can't wait to see you when you get home! :) Good luck! Love you! Kim & the boys

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  3. I am so sorry for all of this trouble that you are going thru. I love you Ami, and I am praying for you. You are so special to God and to many others. Keep the Faith and remember the devil is a liar and Jesus is Lord. Thanks for the blog.

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